Its okay to ask if they can be included in discussions with the care team once a decision is made once important decisions are made its essential that everyone involved or likely to be involved in your childs care is informed many hospitals and palliative care services have documents where these decisions are recorded. Conversations about end of life care remain challenging for health care providers the tendency to delay conversations about care options represents a barrier that impedes the ability of terminally ill patients to participate in decision making family physicians with a palliative care practice are often responsible for discussing end of life care preferences with patients yet there is a . Ethical decision making with end of life care palliative sedation and withholding or withdrawing life sustaining treatments when facing these decisions palliative medicine physicians often cite the doctrine of double effect in ps practice 192223 ethical decision making in the care of the dying and its applications to clinical . Introduction p alliative care is a recognized specialty however evidence and expertise are often borrowed from diverse basic and applied fields 1 3 because one of the central goals of palliative care is to support and assist patients and families with complex decision making 4 collaboration with decision scientists may provide important insights and evidence for palliative care . Clinical decision making in palliative care and end of life care margaret m mahon phd rn nurses often care for patients and their families who are in turmoil because of a new diagnosis or an exacerbation of a long term diagnosis this turmoil can be exacer
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